Concurrent Panel Session - Panel A: Politics and Privacy Regulation
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Presented at Privacy&SecurityConference 2019 by
The Facebook/Cambridge Analytica controversy reveals that political parties and campaigns thrive on personal data. Politicians require businesses and public agencies to follow privacy laws to ensure personal information is kept secure and not improperly used. However, in Canada at least, political parties are not subject to the same level of scrutiny when it comes to how they collect, store and use people’s data. A House of Commons committee has recently recommended significant changes to Canada’s privacy laws, including tighter restrictions on political parties, in order to protect Canadians’ privacy and the country’s democratic voting system. Should political parties be subject to the same privacy protection rules as apply to government agencies and the corporate sector? Or are there essential differences that call for a different set of expectations and legal requirements? Concurrent Panel Session - Panel B: Genetic Privacy and Genomic Driven Medicine – “Big Pharma Would Like Your DNA”Dr. Martin Dawes, Dr. Robert Fraser, Dr. Catalina Lopez-CorreaN/Ahttps://www.rebootcommunications.com/wp-content/uploads/2018/06/1100-Panel-B-Genetic-Privacy-Combined.pdfPrecision medicine allows medical professionals to analyze a person’s genetic makeup and target treatments based on their specific needs. This new technology will not only assist in diagnosing and preventing genetic diseases, but it will also help prevent adverse drug reactions, the 4th leading cause of death in Canada. While the idea of individualized healthcare brings great hope, there are still a number of hurdles that must be overcome. In order for precision medicine to be successful, individuals must be willing to give up their genetic privacy to be used for scientific purposes. How will this valuable data be stored and protected and how can we be sure our genetic data cannot be used against us in the future?